Thank you to all who sent condolences and offered prayers for my sister’s family and her son. And if you would do a favor for me and send this letter out to everyone, I hope it will enlighten people to the very real complications of mononucleosis.
As some of you already know, my nephew, Thomas, passed away on January 6 from complications of mono. My sister, Debbie, and her family live in Jackson, Tennessee and she and her husband have two sons: Michael, 23 and Thomas, 20.
Thomas was an adorable young man–a sophomore at the University of Alabama majoring in Marine Biology–and loved and respected by everyone he knew. When he came home for the holidays from school, he did not feel well. He told his parents that he just felt like “crap” and didn’t have any interest in going out with his high school buddies who were all home for Christmas. He was diagnosed with mono at a clinic in Jackson, and suffered through Christmas with the typical mono symptoms, including general body aches and severe sore throat. On January 2, he became confused and experienced blurred vision and very painful headaches and was admitted to the neuro floor of the hospital with a diagnosis of encephalomyelitis, a complication of the mono virus. Over the course of the next few days he was never really coherent, and had constant and severe headaches. In the early morning hours of January 5, he stopped breathing due to rapid swelling of his brain, and even emergency surgery to relieve pressure on the brain didn’t help. On the morning of January 6, Thomas was pronounced dead from this horrific complication.
My family has been devastated, as you can imagine, and I learned from talking with his neurologist that this is certainly not a rare occurrence. My daughter, Shelby, had mono in the spring, as many kids have had at her high school, and I certainly never imagined anything even remotely similar to this happening to her. Oddly enough, her doctor never mentioned this possibility. I only found out about encephalitis as a complication after I asked about the ramifications of this disease. Even then, I suppose I took it lightly and never really worried. I did watch her very closely and the disease resolved itself after a little over two weeks.
My worry now is that most parents probably have no idea that a child can die quickly from having mono. Please press your doctor for information if mono is diagnosed in one of your children. Thomas’s doctor never mentioned encephalitis as a complication. Watch them and listen carefully to them and never hesitate to call the doctor with questions if you’re not sure of something. This letter is not meant as a scare tactic and you shouldn’t automatically think the worst, but being aware may help. And, in my opinion, if a doctor does not mention this type of complication, this is a disservice to you as a parent.
In addition, teachers may not realize just how sick a student can be. We faced this dilemma with one of Shelby’s teachers who was totally inflexible with make-up work and tests, so catching up was very difficult for her, which resulted in lower grades in a very difficult class.
Thank you all for your thoughts and prayers for Thomas and his family. He was a gift to us for too short a time and will be missed always. We have had quite the education from this experience and if you could share this information with family and friends, hopefully a family may benefit from the information in the event that mono is diagnosed in their child.
Patti